Cross-cultural adaptation of the Social and Emotional Questionnaire on Dementia for the Brazilian population
Keywords:
Awareness, Cross-cultural comparison, Questionnaires, Dementia, EmotionsAbstract
CONTEXT AND OBJECTIVE: Impairments in social and emotional functioning may affect the commu-nication skills and interpersonal relationships of people with dementia and their caregivers. This study had the aim of presenting the steps involved in the cross-cultural adaptation of the Social and Emotional Questionnaire (SEQ) for the Brazilian population. DESIGN AND SETTING: Cross-cultural adaptation study, conducted at the Center for Alzheimer’s Disease and Related Disorders in a public university. METHODS: The process adopted in this study required six consecutive steps: initial translation, translation syn-thesis, back translation, committee of judges, pretesting of final version and submission to the original author. RESULTS: In general, the items had semantic, idiomatic, conceptual and experiential equivalence. During the first pretest, people with dementia and their caregivers had difficulties in understanding some items relat-ing to social skills, which were interpreted ambiguously. New changes were made to allow better adjustment to the target population and, following this, a new pretest was performed. This pre-test showed that the changes were relevant and gave rise to the final version of the instrument. There was no correlation between education level and performance in the questionnaire, among people with dementia (P = 0.951). CONCLUSION: The Brazilian Portuguese version of the Social and Emotional Questionnaire was well under-stood and, despite the cultural and linguistic differences, the constructs of the original version were maintained.
Downloads
References
Dourado MC, Mograbi DC, Santos RL, et al. Awareness of disease in dementia: factor structure of the assessment scale of psychosocial impact of the diagnosis of dementia. J Alzheimers Dis. 2014;41(3):947-56.
Dourado M, Laks J, Rocha M, et al. Consciência da doença na demência: resultados preliminares em pessoas com doença de Alzheimer leve e moderada [Awareness of disease in dementia: preliminary results in patients with mild and moderate Alzheimer’s disease]. Arq Neuropsiquiatr. 2005;63(1):114-8.
Clare L, Whitaker CJ, Nelis SM, et al. Multidimensional assessment of awareness in early-stage dementia: a cluster analytic approach. Dement Geriatr Cogn Disord. 2011;31(5):317-27.
Al-Aloucy MJ, Cotteret R, Thomas P, et al. Unawareness of memory impairment and behavioral abnormalities in patients with Alzheimer’s disease: relation to professional health care burden. J Nutr Health Aging. 2011;15(5):356-60.
Sousa MFB, Santos RL, Brasil D, Dourado M. Consciência da doença na demência do tipo Alzheimer: uma revisão sistemática de estudos longitudinais [Awareness of disease in dementia of the Alzheimer type: a systematic review of longitudinal studies]. J Bras Psiquiatr. 2011;60(1):50-6.
Clare L, Rowlands J, Bruce E, Surr C, Downs M. ‘I don’t do like I used to do’: a grounded theory approach to conceptualising awareness in people with moderate to severe dementia living in long-term care. Soc Sci Med. 2008;66(11):2366-77.
Nelis SM, Clare L, Martyr A, et al. Awareness of social and emotional functioning in people with early-stage dementia and implications for carers. Aging Ment Health. 2011;15(8):961-9.
Shimokawa A, Yatomi N, Anamizu S, et al. Comprehension of emotions: comparison between Alzheimer type and vascular type dementias. Dement Geriatr Cogn Disord. 2000;11(5):268-74.
Mendez MF, Shapira JS. Loss of emotional insight in behavioral variant of frontotemporal dementia or “frontal anosodiaphoria”. Conscious Cogn. 2011;20(4):1690-6.
Sturm VE, Rosen HJ, Allison S, Miller BL, Levenson RW. Self-conscious emotion deficits in frontotemporal lobar degeneration. Brain. 2006;129(Pt 9):2508-16.
Bramham J, Morris RG, Hornak J, Bullock P, Polkey CE. Social and emotional functioning following bilateral and unilateral neurosurgical prefrontal cortex lesions. J Neuropsychol. 2009;3(Pt 1):125-43.
Belfort T, Sousa MFB, Santos RL, et al. Consciência do déficit na Doença de Alzheimer: diferenças entre os domínios cognitivo e funcional [Awareness of deficit in Alzheimer’s disease: the differences between the cognitive and functional domain]. J Bras Psiquiatr. 2013;62(3):217-24.
Sardinha A, Levitan MN, Lopes FL, et al. Tradução e adaptação transcultural do Questionário de Atividade Física Habitual [Translation and cross-cultural adaptation of the Habitual Physical Activity Questionnaire]. Rev Psiquiatr Clín (São Paulo). 2010;37(1):16-22.
Wall SE, Huw Williams W, Morris RG, Bramham J. The development of a new measure of social-emotional functioning for young adolescentes. Clin Child Psychol Psychiatry. 2011;16(3):301-15.
Morris RG, Bramham J, Smith E, Tchanturia A. Empathy and social functioning in anorexia nervosa before and after recovery. Cogn Neuropsychiatry. 2014;19(1):47-57.
Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine (Phila PA 1976). 2000;25(24):3186-91.
Mattos P, Segenreich D, Saboya E, et al. Adaptação transcultural para o português da escala Adult Self-Report Scale para avaliação do transtorno de déficit de atenção/hiperatividade (TDAH) em adultos [Transcultural adaptation of the Adult Self-Report Scale into Portuguese for evaluation of adult attention-deficit/hyperactivity disorder (ADHD)]. Rev Psiquiatr Clín (São Paulo). 2006;33(4):188-94.
Reichenheim ME, Moraes CL. Operacionalização de adaptação transcultural de instrumentos de aferição usados em epidemiologia [Operationalizing the cross-cultural adaptation of epidemiological measurement instruments]. Rev Saúde Pública. 2007;41(4):665-73.
Florencio LL, Chaves TC, Branisso LB, et al. 12 item Allodynia Symptom Checklist/Brasil: adaptação transcultural, consistência interna e reprodutibilidade [12 item Allodynia Symptom Checklist/Brasil: cross-cultural adaptation, internal consistency and reproducibility]. Arq Neuropsiquiatr. 2012;70(11):852-6.
Amaral M, Paula RL, Drummond A, Dunn L, Mancini MC. Tradução do questionário Children Helping Out – Responsibilities, Expectations and Supports (CHORES) para o português - Brasil: equivalências semântica, idiomática, conceitual, experiencial e administração em crianças e adolescentes normais e com paralisia cerebral [Translation of the Children Helping Out - Responsibilities, Expectations and Supports (CHORES) questionnaire into Brazilian-Portuguese: semantic, idiomatic, conceptual and experiential equivalences and application in normal children and adolescents and in children with cerebral palsy]. Rev Bras Fisioter. 2012;16(6):515-22.
Novelli MMPC, Dal Rovere HH, Nitrini R, Caramelli P. Cross-cultural adaptation of the quality of life assessment scale on Alzheimer disease. Arq Neuropsiquiatr. 2005;63(2A):201-6.
American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. (DSM IV-TR) Washington: American Psychiatric Press, 2000.
Maia ALG, Godinho C, Ferreira ED, et al. Aplicação da versão brasileira da escala de avaliação clínica da demência (Clinical Dementia Rating – CDR) em amostras de pacientes com demência [Application of the Brazilian version of the CDR scale in samples of dementia patients]. Arq Neuropsiquiatr. 2006;64(2B):485-9.
Bertolucci PHF, Brucki SMD, Campacci SR, Juliano Y. O mini-exame do estado mental em uma populaçäo geral: impacto da escolaridade [The mini-mental state examination in a general population: impact of educational status]. Arq Neuropsiquiatr. 1994;52(1):1-7.
Rzezak P, Antunes HKM, Tufik S, Mello MT. Tradução e adaptação transcultural do “Game Dice Task” para população brasileira [Translation and cultural adaptation of the Game Dice Task to Brazilian population]. Arq Neuropsiquiatr. 2012;70(12):929-33.
Kachani AT, Barbosa ALR, Brasiliano S, et al. Tradução, adaptação transcultural para o português (Brasil) e validação de conteúdo da Body Checking Cognitions Scale (BCCS) [Portuguese (Brazil) translation, cross-cultural adaptation and content validity of Body Checking Cognitions Scale – BCCS]. Rev Psiquiatr Clín (São Paulo). 2011;38(1):13-8.